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The Endometriosis Summit 2019 Program

March 3 2019 W Hoboken 225 River Street Hoboken NJ 8am-500pm

Preliminary Program 

8-830am Registration and light breakfast https://www.eventbrite.com/e/the-endometriosis-summit-patient-practitioner-town-meeting-tickets-52736747030?aff=ebdshpsearchautocomplete


830-840- Welcome Address Dr. Sallie Sarrel PT ATC DPT, Physical Therapist and Endometriosis Advocate, New York and New Jersey 

Facebook: Sallie Sarrel, Physical Therapist: Endometriosis and Pelvic Pain Management

Instagram and Twitter: @drsalliept


840-920 Changing Paradigms for Changing Times A lot has happened since endometriosis was discovered by Sampson in the 1920’s or has it? In this panel the patient and practitioner perspective will be explored, as well as the how the medical culture of endometriosis care impacts those with the disease, how the delay of diagnosis influences trust, educational resources and care. Current ACOG standards and access to treatment will be discussed as well.  Moderated by Shannon Cohn, Producer and Director of Endo What? And TEDX Speaker “The Most Common Disease You have Never Heard of”   Instagram, Twitter, and Facebook: @endowhat

Featuring:

Dr. Malcolm Mackenzie, OBGYN and MIG Surgeon, Center for Women, Mount Auburn Hospital, Boston Massachusetts 

Dr. Noemie Elhadad, Associate Professor Biomedical Informatics, Columbia University, principal investigator Citizen Endo 

Instagram: @citizenendo_team

Dr. Emily Parent, OBGYN and MIG Surgeon, Greater Boston Area


920-930 Directions for Standards of Care and Coding Dr. Ted Lee, OBGYN and MIG Surgeon, University of Pittsburgh. Dr. Lee will discuss updating the coding system for excision of endometriosis, how it impacts patient care, reimbursement, and development of surgeons and their skills. 


935-950 Minimize the Minimization: What did you just say to me? -an interactive experience on the profound impact of well meaning but uninformed providers, facilitated by Casey Berna MSW,  and the Endo Co and Kelsey R Bates,  Melissa Tison, Endo Invisible

Instagram: @endosocialworker  @theendo.co @natalie_archer @kelseyrbates @endoinvisible

Twitter:  @chancesour @theendoco @endoinvisible


955- 1050 Endometriosis 101: Where to begin as a pelvic pain practitioner, OBGYN, surgeon, allied health care practitioner or as a person with endometriosis. When pelvic pain, menstrual cramps, IBS issues, and more interfere with quality of life it is time to take action. This panel will incorporate diagnosis, surgical management, advantages and disadvantages of both medical management and surgery, adhesion issues, re-operative endometriosis, surgical pain management, and the how to’s on fostering a second opinion.  Moderated by Dr. Andrea Vidali, OBGYN, Excisionist and Reproductive Endocrinologist, Care Point Health Hoboken, New Jersey 

Featuring: 

Dr. John F. Dulemba, OBGYN and MIG Surgeon, The Women’s Center, Denton Texas 

Facebook: John F Dulemba, MD-Endometriosis and Pelvic Pain

Dr. Kenneth Barron, OBGYN and MIG Surgeon, The Center for Advanced Gynecology, Charlottesville, Virginia

Facebook: Center for Advanced Gynecology

Instagram: Center_for_Advanced_Gynecology

Dr. Juan L Salgado, OBGYN and MIG Surgeon, San Juan, Puerto Rico

Dr. Laurence Orbuch, OBGYN and MIG Surgeon, offices in New York and Los Angeles 

Instagram @dririsorbuch


1050-1105 Networking Break 


1105-1120 Keynote: Bench to Beltway to Bedside: What needs to be done to improve life with endometriosis Heather Guidone, Center for Endometriosis Care, Atlanta Georgia

Heather Guidone is the Surgical Program Director of the Center for Endometriosis Care in Atlanta, Georgia. For more than 25 years, she has focused on endometriosis education, research, policy reform, patient-centered caregiving, health literacy, patient engagement/adherence and much more. She is a Board Certified Patient Advocate, Health Educator & Clinical CME/Medical Writer, CITI-certified Research Co-Investigator and more - but most importantly, she is an individual who has also struggled with and ultimately overcame advanced endometriosis and infertility. She volunteers her time and service to several endeavors as a Board Member, Advisor, Speaker, Abstract Reviewer, and member of many Councils, Committees and Special Interest Groups. She has contributed to countless books, articles and publications on endometriosis, pelvic pain and women’s health. Her priority focus remains on reducing the time to diagnosis and fighting for access to effective treatments in order to improve outcomes; collaborative network building among multidisciplinary providers; and ensuring patient stakeholder representation across the fields of endometriosis and pelvic pain.

Facebook: Center for Endometriosis Care

Instagram: @centerforendocare

Twitter: @CtrForEndoCare


1120-1215 Building Referral Networks for Endometriosis Care It takes a multi-specialty team to assist the person with endometriosis in accessing care. From the internist and the local gyn there are signs and symptoms the generalist can spot. Understanding when to refer our and when to seek other care as a patient. How to build multi-disciplinary teams, what to look for beyond endometriosis as a driver of pain and the advantages and disadvantages of traveling for care, as well as caring for the person who has traveled for care. moderated by Heather Guidone, Center for Endometriosis Care 

Featuring:

Dr Farr Nezhat, GYN/ONC and MIG Surgeon, Nezhat Surgery for Gynecology/Oncology, founder of Worldwide Endometriosis March, New York, New York

Dr Gaby Moawad, OBGYN and MIG Surgeon, George Washington University Hospital, Washington DC

Linked In: Gaby Moawad

Instagram: @gabymoawad

Dr. Joeseph S Racuuia, General, Hepatobiliary and Colorectal Surgery, Care Point Hospital, Hoboken, New Jersey

Dr. Allyson Shrikhande, Pelvic Pain Physiatrist, Pelvic Pain Rehabilitation and Care Point Hospital, New York, New York; Hoboken, New Jersey

Instagram: @doctor.allyson

Dr. Yaniv Larish, Urology, Fifth Avenue Urology, New York, New York; Care Point Hospital, Hoboken, New Jersey

  


1230-110 “Gut, Brain and Biomes: Functional Nutrition’s Influences on Endometriosis” Nutrition Coffee Talk with Dr. Jessica Drummond, DCN, CNS, PT, NBC-HWC Founder of the Integrative Women’s Health Institute, is passionate about empowering people who struggle with chronic pelvic pain conditions and hormonal imbalances, and female athletes, and supporting pelvic health and wellness professionals globally. She has two decades of experience working in pelvic health physical therapy and functional nutrition, and teaching her colleagues, from an integrative, evidence-based, and conservative perspective.

Dr. Jessica Drummond PT, PhD.

Twitter: @jessrdrummond

Facebook: @IntegrativePelvicHealth 

Instagram: @integrativewomenshealth


115-205 Fertility and Endometriosis Nearly 50% of people with endometriosis suffer from infertility. Better management of the disease and of inflammatory issues may improve fertility rates. Where to begin exploring fertility options, if endometriosis means infertility will automatically be an issue, fertility preservation, and how surgery may or may not impact endometriosis, ovarian reserve and pregnancy rates. 

Featuring:

Dr. Andrea Vidali, OBGYN, MIG Surgeon Reproductive Endocrinologist, Care Point Health Hoboken, New Jersey; Braverman IVF and Reproductive Immunology, New York New York

Facebook: Andrea Vidali MD Endometriosis, Adenomyosis, Miscarriage

Instagram: @endometriosis_surgeon

Twitter: @Drvidali

Dr. Jeffrey Braverman, OBGYN, Reproductive Immunologist, Braverman IVF and Reproductive Immunology, New York New York

Facebook: Braverman IVF & Reproductive Immunology

Facebook Group: Endometriosis TTC

Twitter: @BravermanReprod

Dr. Antonio Gargiulo OBGYN and MIG Surgeon, Brigham Health and Harvard, Boston, Massachusetts


210-220 Teens and Endometriosis, Dr. Iris Orbuch, OBGYN and MIG Surgeon, offices in New York and Los Angeles 

Instagram @dririsorbuch


220-340 The Lightning Round: Endometriosis from Head to Toe Healing from endometriosis takes multi-disciplinary often integrative care. From the brain to the pelvic the bones, muscles, nerves and fascia impact pain and function. Explore common causes of pain in the patient with endometriosis. Moderated by Dr. Sallie Sarrel, PT ATC DPT a New York and New Jersey based physical therapist specializing in endometriosis and its associated conditions. 

Featuring:

Its not in your head, but it is: the central nervous system’s role in pain-Dr. Tayyaba Ahmed Pelvic Pain Physiatrist, Pelvic Pain Rehabilitation and Care Point Hospital, New York, New York; Hoboken, New Jersey

Facebook: Dr Tayyaba Ahmed Pelvic Pain Specialist

Instagram: @drtayahmed

Movement and Endometriosis-Niva Herzig, PT. Core Dynamics Physical Therapy, Hoboken and Englewood

Facebook: Core Dynamics Physical Therapy

Instagram: @coredynamicsphysicaltherapy

The Cult of the Occult Hernia: The Extra Peritoneal Space’s Impact on Pelvic Pain -Dr. Marc Zoland General Surgeon, Pubalgia and Occult Hernia Specialist, New York, New York 

Endometriosis’s Evil Twin: Bladder Driven Pain post excision-Dr. Sonia Bahlani,      

Specialist in Urological and Gynecological Pelvic Pain, New York, New York 

Instagram: @ Pelvicpaindoc

Facebook: @Pelvicpaindoctor 

Orthopedic Considerations of Pelvic Pain Post Excision of Endometriosis, Dr. Amy Stein, PT, DPT. Beyond Basics, New York, New York. 

Facebook: Beyond Basics Physical Therapy

Instagram: @beyondbasicspt


340-350 Snack Break 


350-445 Safety, Sexuality, and Gender Inclusivity 

Diagnostic ambiguity and delay cultivate uncomfortable environments for people with endometriosis. Doctors often minimize the patient and minimize the plight of living a life in chronic pain. This panel will explore trust and safety among the endometriosis population.

A disease with painful sex influences people with the disease. From actually trying to survive sex with endometriosis to learning how to embrace and enjoy a body that pain, fluctuating hormones, and medicalization has changed is difficult regardless of gender identity. However, especially once the disease has been managed, sexuality needs to be addressed be it through pelvic floor therapy or another means. 

Gender is all around us. Upbringing, culture, peers, community, media, and religion, are some of the many influences that shape our understanding of this core aspect of identity. Because of its prominence in everyday life, creating gender inclusive environments, in which everyone is welcome, is critical for the success for people with endometriosis. Obtaining care outside gender normatives can be traumatizing. Body dysphoria for transgender people with endometriosis can be crippling. Doctors, Nurses and Physical Therapists need to further the conversation on the endometriosis community becoming more inclusive. 

Hollis Herman PT, DPT OCS, WSC, founder of Herman and Wallace, owner of Health Women Healthy Men, Cambridge Massachusetts.

Facebook: Holly Herman

Twitter:@hollyhermanPT

Instagram:@healthywomen_healthymen_llc

Hannah Schoonover PT DPT, Body Connect Health and Wellness, Washington DC

Facebook:Body Connect Health & Wellness

Twitter:@bodyconnecthw

Instagram:@bodyconnectdc

Emily Freeman, MSc, PhD, behavioral scientist and endometriosis patient advocate.

Twitter: @emilycfreeman

Cori Smith, Endometriosis Survivor, Endometriosis Advocate and Transgender Male

Instagram and Twitter: @Cori5mith


445 Conclusions and Future Directions



Our Partners

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