8-830am Registration and continental breakfast https://www.eventbrite.com/e/the-endometriosis-summit-patient-practitioner-town-meeting-tickets-52736747030?aff=ebdshpsearchautocomplete
830-840- Welcome Address Dr. Sallie Sarrel PT ATC DPT, Physical Therapist and Endometriosis Advocate, New York and New Jersey
Facebook: Sallie Sarrel, Physical Therapist: Endometriosis and Pelvic Pain Management
Instagram and Twitter: @drsalliept
840-930 Changing Paradigms for Changing Times A lot has happened since endometriosis was discovered by Sampson in the 1920’s or has it? In this panel the patient and practitioner perspective will be explored, as well as the how the medical culture of endometriosis care impacts those with the disease, how the delay of diagnosis influences trust, educational resources and care. Current ACOG standards and access to treatment will be discussed as well. Moderated by Shannon Cohn, Producer and Director of Endo What? And TEDX Speaker “The Most Common Disease You have Never Heard of” Instagram, Twitter, and Facebook: @endowhat
Dr. Malcolm Mackenzie, OBGYN and MIG Surgeon, Center for Women, Mount Auburn Hospital, Boston Massachusetts
Dr. Noemie Elhadad Associate Professor Biomedical Informatics, Columbia University, principal investigator Citizen Endo
More panelists to be added
935-950 Minimize the Minimization: What did you just say to me? -an interactive experience on the profound impact of well meaning but uninformed providers, facilitated by Casey Berna MSW, and the Endo Co and Kelsey R Bates, Melissa Tison, Endo Invisible
Instagram: @endosocialworker @theendo.co @natalie_archer @kelseyrbates @endoinvisible
Twitter: @chancesour @theendoco @endoinvisible
955- 1045 Endometriosis 101: Where to begin as a pelvic pain practitioner, OBGYN, surgeon, allied health care practitioner or as a person with endometriosis. When pelvic pain, menstrual cramps, IBS issues, and more interfere with quality of life it is time to take action. This panel will incorporate diagnosis, surgical management, advantages and disadvantages of both medical management and surgery, adhesion issues, re-operative endometriosis, surgical pain management, and the how to’s on fostering a second opinion. Moderated by Dr. Andrea Vidali, OBGYN, Excisionist and Reproductive Endocrinologist, Care Point Health Hoboken, New Jersey
Dr. John F. Dulemba, OBGYN and MIG Surgeon, The Women’s Center, Denton Texas
Facebook: John F Dulemba, MD-Endometriosis and Pelvic Pain
Dr. Karen Tang OBGYN and MIG Surgeon, Gynecology Specialists of Philadelphia, Philadelphia, Pennsylvania
Facebook Karen Tang
Dr. Kenneth Barron, OBGYN and MIG Surgeon, The Center for Advanced Gynecology, Charlottesville, Virginia
Facebook: Center for Advanced Gynecology
Dr. Laurence Orbuch, OBGYN and MIG Surgeon, offices in New York and Los Angeles
1055-1115 Keynote: Bench to Beltway to Bedside: What needs to be done to improve life with endometriosis Heather Guidone, Center for Endometriosis Care, Atlanta Georgia
Heather Guidone is the Surgical Program Director of the Center for Endometriosis Care in Atlanta, Georgia. For more than 25 years, she has focused on endometriosis education, research, policy reform, patient-centered caregiving, health literacy, patient engagement/adherence and much more. She is a Board Certified Patient Advocate, Health Educator & Clinical CME/Medical Writer, CITI-certified Research Co-Investigator and more - but most importantly, she is an individual who has also struggled with and ultimately overcame advanced endometriosis and infertility. She volunteers her time and service to several endeavors as a Board Member, Advisor, Speaker, Abstract Reviewer, and member of many Councils, Committees and Special Interest Groups. She has contributed to countless books, articles and publications on endometriosis, pelvic pain and women’s health. Her priority focus remains on reducing the time to diagnosis and fighting for access to effective treatments in order to improve outcomes; collaborative network building among multidisciplinary providers; and ensuring patient stakeholder representation across the fields of endometriosis and pelvic pain.
Facebook: Center for Endometriosis Care
1115-1210 Building Referral Networks for Endometriosis Care It takes a multi-specialty team to assist the person with endometriosis in accessing care. From the internist and the local gyn there are signs and symptoms the generalist can spot. Understanding when to refer our and when to seek other care as a patient. How to build multi-disciplinary teams, what to look for beyond endometriosis as a driver of pain and the advantages and disadvantages of traveling for care, as well as caring for the person who has traveled for care. moderated by Heather Guidone, Center for Endometriosis Care
Dr Farr Nezhat OBGYN and MIG Surgeon, Nezhat Surgery for Gynecology/Oncology, founding member of Worldwide Endometriosis March, New York, New York
Dr Gaby Moawad, OBGYN and MIG Surgeon, George Washington University Hospital, Washington DC
Linked In: Gaby Moawad
Dr. Joeseph S Racuuia General, Hepatobiliary and Colorectal Surgery, Care Point Hospital, Hoboken, New Jersey
Dr. Allyson Shrikhande Pelvic Pain Physiatrist, Pelvic Pain Rehabilitation and Care Point Hospital, New York, New York; Hoboken, New Jersey
More to be added
1210: ENDO What 2 Trailer
1220-1 “Gut, Brain and Biomes: Functional Nutrition’s Influences on Endometriosis” Lunch and Learn with Dr. Jessica Drummond, DCN, CNS, PT, NBC-HWC Founder of the Integrative Women’s Health Institute, is passionate about empowering people who struggle with chronic pelvic pain conditions and hormonal imbalances, and female athletes, and supporting pelvic health and wellness professionals globally. She has two decades of experience working in pelvic health physical therapy and functional nutrition, and teaching her colleagues, from an integrative, evidence-based, and conservative perspective.
Dr. Jessica Drummond PT, PhD.
105-200 Fertility and Endometriosis Nearly 50% of people with endometriosis suffer from infertility. Better management of the disease and of inflammatory issues may improve fertility rates. Where to begin exploring fertility options, if endometriosis means infertility will automatically be an issue, fertility preservation, and how surgery may or may not impact endometriosis, ovarian reserve and pregnancy rates.
Dr. Andrea Vidali, OBGYN, MIG Surgeon Reproductive Endocrinologist, Care Point Health Hoboken, New Jersey; Braverman IVF and Reproductive Immunology, New York New York
Facebook: Andrea Vidali MD Endometriosis, Adenomyosis, Miscarriage
Dr. Jeffrey Braverman, OBGYN, Reproductive Immunologist, Braverman IVF and Reproductive Immunology, New York New York
Facebook: Braverman IVF & Reproductive Immunology
Facebook Group: Endometriosis TTC
Dr. Antonio Gargiulo OBGYN and MIG Surgeon, Brigham Health and Harvard, Boston, Massachusetts
205-320 The Lightning Round: Endometriosis as a Whole Body Disease Healing from endometriosis takes multi-disciplinary often integrative care. From the brain to the pelvic the bones, muscles, nerves and fascia impact pain and function. Explore common causes of pain in the patient with endometriosis. Moderated by Dr. Sallie Sarrel, PT ATC DPT a New York and New Jersey based physical therapist specializing in endometriosis and its associated conditions.
Its not in your head, but it is: the central nervous system’s role in pain-Dr. Tayyaba Ahmed Pelvic Pain Physiatrist, Pelvic Pain Rehabilitation and Care Point Hospital, New York, New York; Hoboken, New Jersey
Facebook: Dr Tayyaba Ahmed Pelvic Pain Specialist
The Cult of the Occult Hernia: The Extra Peritoneal Space’s Impact on Pelvic Pain -Dr. Marc Zoland General Surgeon, Pubalgia and Occult Hernia Specialist, New York, New York
Endometriosis’s Evil Twin: Bladder Driven Pain post excision-Dr. Sonia Bahlani,
Specialist in Urological and Gynecological Pelvic Pain, New York, New York
Instagram: @ Pelvicpaindoc
Movement and Endometriosis-Niva Herzig, PT. Core Dynamics Physical Therapy, Hoboken and Englewood
Facebook: Core Dynamics Physical Therapy
Orthopedic Considerations of Pelvic Pain Post Excision of Endometriosis, Dr. Amy Stein, PT, DPT. Beyond Basics, New York, New York.
Facebook: Beyond Basics Physical Therapy
320-330 Snack Break
335-435 Safety, Sexuality, and Gender Inclusivity
Diagnostic ambiguity and delay cultivate uncomfortable environments for people with endometriosis. Doctors often minimize the patient and minimize the plight of living a life in chronic pain. This panel will explore trust and safety among the endometriosis population.
A disease with painful sex influences people with the disease. From actually trying to survive sex with endometriosis to learning how to embrace and enjoy a body that pain, fluctuating hormones, and medicalization has changed is difficult regardless of gender identity. However, especially once the disease has been managed, sexuality needs to be addressed be it through pelvic floor therapy or another means.
Gender is all around us. Upbringing, culture, peers, community, media, and religion, are some of the many influences that shape our understanding of this core aspect of identity. Because of its prominence in everyday life, creating gender inclusive environments, in which everyone is welcome, is critical for the success for people with endometriosis. Obtaining care outside gender normatives can be traumatizing. Body dysphoria for transgender people with endometriosis can be crippling. Doctors, Nurses and Physical Therapists need to further the conversation on the endometriosis community becoming more inclusive.
Hollis Herman PT, DPT OCS, WSC, founder of Herman and Wallace, owner of Health Women Healthy Men, Cambridge Massachusetts.
Facebook: Holly Herman
Hannah Schoonover PT DPT, Body Connect Health and Wellness, Washington DC
Facebook:Body Connect Health & Wellness
Emily Freeman, MSc, PhD, behavioral scientist and endometriosis patient advocate.
Cori Smith, Endometriosis Survivor, Endometriosis Advocate and Transgender Male
Instagram and Twitter: @Cori5mith
SPEAKERS ARE STILL BEING ADDED
PROGRAM SUBJECT TO CHA
Karen Tang, MD, is a surgeon and leader in woman’s health as well as advanced GYN surgery. An endometriosis specialist and mom of three.